1. Resources

Head and Neck Cancer resources | Head and Neck Cancer Australia

The Head and Neck Cancer Australia website (formerly known as Beyond Five) includes a comprehensive library of information sheets, animations, videos and podcasts developed and regularly updated by leading head and neck cancer clinicians across Australia and New Zealand with the input of patients and carers.

This page includes a complete list of all resources developed by Head and Neck Cancer Australia and external websites that you may find useful. 

To see the list of all expert contributors involved in developing Head and Neck Cancer Australia's resources please click here.

1) Head and Neck Cancer Australia Resources

about us

• About us (Video)

Health and Wellbeing

• Cancer Care Team (PDF)
• Cancer Care Team (Video)
• Caregivers, family and friends (PDF)
• Diet and Nutriton (PDF)
• Exercise (PDF)
• Facial Prosthetics (Video)
• Finances (PDF)
• Follow-up Care (PDF)
• Gastrostomy Tube - Caring for and using (Video)
• Head and Neck Cancer - a patient’s experience (Podcast)
• Living with Head and Neck Cancer (Podcast)
• ​Lymphoedema  (PDF)
• Nutrition Videos
  • Video 1: Nutrition and preparing for treatment
  • Video 2: Nutrition, swallowing and managing side-effects
  • Video 3: Nutrition during and after treatment
  • Video 4: Denyse: a patient's perspective
  • Video 5: Robert: a patient's perspective
  • Video 6: Carol: a carer's perspective
• Patient and Carer Videos
  • Amanda's story
  • Gary's story
  • Mick's story
  • Nabil's story
  • Caregiver's perspective
• ​Oral Health (PDF)
• Mouthcare for head and neck cancer patients (Video)
• Pain management (PDF)
• Speech, voice and swallowing (PDF)
• Wellbeing during Cancer treatment (PDF)
• What is head and neck cancer (PDF)
• Wound care (PDF)

human papilloma virus

• Human Papilloma Virus (PDF)
• Oropharyngeal cancer and the Human Papilloma Virus (Podcast)

Immunotherapy

• Immunotherapy for Head and Neck Cancer (WEBPAGE)

Radiation Therapy

• Mask Fitting  (PDF)
• Radiation Therapy - planning  (PDF)
• Radiation therapy for Head and Neck Cancer (Podcast)
  ​

Surgical Procedures

• Craniofacial resection (PDF)
• Dental Extraction (PDF)
• Endoscopic sinus surgery (PDF)
• Facial nerve sacrifice - radical parotidectomy (PDF)
• Feeding tubes (PDF)
• Glossectomy (PDF)
• Hypopharyngectomy (PDF)
• Lateral Temporal Bone Surgery  (PDF)
• Local Excision  (PDF)
• Lymph Node & Sentinel Node Biopsy (PDF)
• Mandibular Lingual Release  (PDF)
• Mandibulectomy (PDF)
• Maxillary Swing Approach (PDF)
• Maxillectomy (PDF)
• Neck Dissection (PDF)
• Orbital Exenteration (PDF)
• Oropharyngectomy  (PDF)
• Parotidectomy (PDF)
• Partial Laryngectomy (PDF)
• Pharyngo-Oesophagectomy (PDF)
• Radical Parotidectomy (Facial Nerve Sacrifice) (PDF)
• Reconstructive Surgery (Regional Flap) (PDF)
• Reconstructive Surgery (Bony Free Flap) (PDF)
• Reconstructive Surgery (Soft Tissue Free Flap) (PDF)
• Simple Reconstruction (Local and Skin Graft Repair) (PDF)
• Sistrunk (PDF)
• Submandibular Gland Surgery  (PDF)
• Sublingual Gland Surgery  (PDF)
• Thyroidectomy (PDF)
• Tonsillectomy (PDF)
• Total Laryngectomy (PDF)
• Total Laryngopharyngectomy (PDF)
• Tracheostomy (PDF)
• Trans-Oral Robotic Surgery (PDF)
• Trans-Oral Laser Surgery (PDF)

Tests 

• Biopsy (PDF)
• Imaging Tests (PDF)
• Nasoendoscopy (PDF)
• What tests do I need to have? (PDF)
• Sentinel node biopsy and lymph node excision (PDF)

Types of Head and Neck Cancer 

• Hypopharyngeal Cancer (PDF)
• Laryngeal Cancer (PDF)
• Nasopharyngeal Cancer (PDF) 
• Oral Cancer  (PDF)
• Oropharyngeal Cancer (PDF) 
• Nasal and Sinus Cancer (PDF)
• Salivary Gland Cancer (PDF)
• Skin Cancer (PDF)
• Thyroid Cancer (PDF)
• Unknown Primary Cancer (PDF) 

Head and Neck region (animations)

• Larynx and Hypopharynx (Video)
• Nasal Cavity and Paranasal Sinuses (Video)
• Nasopharynx (Video)
• Oral Cavity (Video)
• Oropharynx (Video)
• Salivary Glands (Video)
• Thyroid (Video)
• Unknown Primary Cancer (Video)

2) External Links​

australian - national Links

• Exercise for people living with cancer
• Lifestyle program (ENRICH).
• Skin Cancer
• Understanding Head and Neck CancersUn
• ​Understanding Taste and Smell Changes
• What to expect guide

• Look Good Feel Better

• Exercise in Cancer Care

• Head and Neck Cancer Patient Book (in collaboration with The Swallows UK)

• 2020 Head and Neck Cancer Video Series - produced by Julie McCrossin AM

Topics covered include: 

• Surgery
• Radiation Therapy
• Chemotherapy and Immunotherapy
• Dental Care 
• Managing Distress and Recovery
• Managing Mask Anxiety and The Remove the Mask Research
• Aboriginal & Torres Strait Islander Patients, Family & Community

• Learn more about Radiation Therapy

• How the radiation immobilisation mask is made (Video)
• Radiation challenges and what helped (Video)
• Radiation therapy treatment process (Video)
• Side effects of Radiation Therapy (Video)

nsw

Cancer Institute NSW

• Cancer Patient Information Sheets - translated into over 10 languages 

  • Understanding chemotherapy

  • Common questions about chemotherapy

  • Diarrohoea during cancer treatment

  • Chemotherapy safety at home

  • Infection during cancer treatment

  • Nausea and vomiting during cancer treatment

  • Skin changes and skin care during radiotherapy

  • Mouth problems during cancer treatment

• Mouthcare for head and neck cancer patients (in collaboration with Beyond Five) (Video)

• Gastrostomy Tube Guide (in collaboration with Beyond Five) (Video)

• An introduction for carers
• Asking the right questions
• Carer - the role of
• Carrying the burden
• Diagnosis
• Finding a support group
• Head and Neck Cancer Advice and Stories
• Health pathway explained
• Intimacy
• Living the new normal
• Mental Health at home
• Surgery
  • An introduction
  • Preparing for surgery
  • Quitting smoking and drinking
  • The day of surgery
  • Impact of surgery
  • Procedure for family
  • Ear Surgery
  • Eye Surgery
  • Mouth Surgery
  • Nose Surgery
  • Throat Surgery
• Post surgery
  • An introduction
  • Waking in intensive care
  • Communicating after surgery
  • Day 3 blues
  • Recovery in hospital
  • Managing pain
  • Practicalities
  • For family and carers
  • Managing at home

• Radiotherapy Immobilisation Mask Brochure

  • English

  • Arabic

  • Chinese

  • Serbian

  • Vietnamese

queensland

• Beyond the Blender: Dysphagia made easy (PDF)

Queensland Health

• Diet and nutrition after cancer treatment 
• Eating after radiotherapy to the head and neck area 
• Preparing to eat well during radiotherapy to the head and neck area

victoria

• Nutrition and Speech Pathology Videos

Victorian Integrated Cancer Services

• My Cancer Diagnosis Explained Tool (PDF)

international Links

canada

• About Face

United Kingdom 

• Changing Faces, UK

• Communication Passport

• Mouth cancer

• Nasopharyngeal Cancer

• The Rich Picture on people living with head and neck cancer

• About nasopharyngeal cancer

• Thyroid Cancer

• Mouth and Oropharyngeal Cancer

• Head and Neck Cancer Patient Book (in collaboration with Head and Neck Cancer Support Australia)

USA 

• Laryngeal and Hypopharyngeal Cancer Guide

• Nasopharyngeal Cancer Guide

• Nasal cavity and Paranasal Sinus Cancer Guide

• Oral Cancer Guide

• Oral and Oropharyngeal Cancer Guide

• Thyroid Cancer Guide

• International Anaplastology Association

• Hypopharyngeal Cancer

• Lip and Mouth Cancer

• Nasopharyngeal Cancer

• Thyroid Cancer 

• Clinical Trials.gov